These patients are desperate and vulnerable, often consenting to research studies without fully understanding the potential outcomes. It is therefore imperative to inform patients, the public and regulators of the benefits and harms of these therapies. Tan & Payton (2010) describe the electronic health record (EHR), which dates back to the 1950s. These computerized patient records have evolved into complex systems with many features. They were designed to provide healthcare professionals with a complete picture of a patient's health status at any time and aim to automate and streamline the healthcare professional's workflow (Tan & Payton,